Wednesday, January 25, 2012

Update on Judah 1/25/12

Today we went for Judah's growth assessment ultra sound.  Dr. Bombrys wasn't in today but that was ok because after all it was just for growth assessment.  It was a good visit.  Judah is now 3 lbs and approximately 15" long.  He's in the 95 percentile for his age which is such a great thing.  Some might say that I'm further along but I had my first ultra sound at 4 weeks so my due date is accurate.  
The doctors at University Hospital have mentioned several times that there may be a chromosomal abnormality due to the fact that Judah was diagnosed with two abnormalities (Dandy Walker and Transposition of the Great Arteries).  We rebuke this diagnosis in Jesus name and claim total healing!  Usually babies with chromosomal abnormalities are very small in weight and height which Judah is NOT.  This is great conformation for us that God is moving and working in my womb.  I was asked again today about the amnio and I tried to explain to the ultra sound tech that I just didn't see the point.  The Doctors already know the plan of action for Judah if God doesn't heal him before or at birth.  They want to know if he has a "lethal syndrome" because if he did they would not take any extra precautions to save his life over mine.  I tried to explain that my life is no more valuable than his! Just because I've breathed oxygen doesn't make my life more important.  Life is life - in the womb or outside the womb.  
A very special and anointed woman made Judah a blanket after having a vision of me reading the word over him.  God gave her very specific colors (certain shades of blue, green and white) and miraculously provided the fabric.  She made the blanket and anointed it, then brought it to us at church along with the descriptions of the meanings of the colors.  So now every night I read to Judah I place that anointed blanket on my belly.  It's been so crazy but as soon as I put the blanket on my belly he goes crazy.  I take it off and he is still... I put it back on and he's dancing all around.  I really believe it's the Holy Spirit filling my son and when you are filled with the spirit you just can't be still! :) 
I came across this scripture in my daily reading to Judah.  It stopped my in my tracks and is now the prayer I pray over him. 

Luke 1:76-79 "and you, my little son, will be called a prophet of the Most High, because you will prepare the way for the Lord. You will tell his people how to find salvation through forgiveness of their sins. Because of God's tender mercy, the morning light from heaven is about to break upon us, to give light to those who sit in darkness and in the shadow of death, and to guide us to the path of peace."


Thank you to everyone who has joined us in prayer and stand firmly with us on the promises of God! WE WILL NOT BACK DOWN! We don't know the purposes and plans of God because they are far above our thoughts, plans and ways but we can trust that they are for good and not for evil - Plans to give us a future and a hope.  Judah has a great purpose and he will live it out I'm certain of that.  I don't know what it looks like but I know that he is the Lord's! He belongs to the Almighty God and you can't get any better care than that!  


I have one more Doctors visit in January and then several in February already on the books... I'll keep you posted as we hear more victorious reports! 


Proud Mamma of all my precious babies - the ones here and the ones in Heaven,
Jillian

Wednesday, January 11, 2012

Update on Judah 1/11/12

Today we went back to Children's in Cincinnati for another fetal echo on Judah and we also met with the heart surgeon. 
The Echo showed that Judah still has what is called Transposition of the Great Arteries and for those of you who might not have read my last blog that basically means that the Left ventricle that pumps the blue blood is flowing where the red blood (oxygenated blood) should be flowing and the Right Ventricle (Red Blood) is flowing where the Blue blood should be flowing. This means that once he's born none of his blood would be getting to the lungs to be oxygenated therefore he would need to undergo open heart surgery to switch the ventricles.  Also the Aortic Valve is not exactly right but the surgeon felt that it's most likely a bicuspid valve which would not need any real attention because it's a common abnormality that doesn't hinder anything.  However if it's severely abnormal they will have to switch the valves at the time of surgery.  The wonderful news is there is no longer a hole in the bottom portion of his heart! PRAISE GOD!  That would have added some major complications in the surgical plan. Also there is a hole (which is suppose to be there) in the top left portion of the heart and if that hole is not large enough they will go in using a ballon prior to the surgery to make the hole bigger so the blood flows better. 
So here is the (If God doesn't heal him) plan from the surgeon...
Immediately after delivery he will have 2 small tubes put into his belly button.  One which will constantly monitor his blood pressure and the second one will be giving him a medicine that will keep his heart from needing to oxygenate his own blood.  Basically it's like keeping him in the womb - as long as he is in my belly his heart doesn't need to oxygenate his own blood because my body some how does it for him.  At that time they will check his oxygen saturation if it's not at a good level they will need to do the ballon procedure that makes the hole bigger so that the blood flows successfully.  If that happens we won't even get to hold him after he's born but as long as he is stable and everything looks good that won't be a problem.  After he is born they will do an echo on him to see everything more clearly.  After that test surgical plans will be made.  He would be looking at having the heart surgery on day 2 or 3 of his life because they want him to recover from delivery... it's all about his stability.  The surgery will take about 6-7 hours total and he would stay in ICU for several days and then be moved to the main floor.  We would be looking at a 2 week recovery time in the hospital.  The main concerns after he is moved to the main floor all pretty much revolve around feeding.  Often times babies that undergo things like this are delayed in learning how to feed.  I'm planning on nursing so if God doesn't heal him I'm gonna be a human cow lol.  I'll be a pumping machine.  There isn't much I can do for our little man but I can give him love, prayers and Breast Milk haha. 
Today we didn't hear the doctors give Judah a clean bill of health but we are thankful for the victory we did receive with the hole being gone! You have no idea how big that is!! Also the heart Doctor said "I'm not a brain doctor but his brain doesn't look bad to me.  There isn't excessive fluid (which is often there with babies that have Dandy Walker)" She wasn't saying his Dandy Walker is gone but it did give us comfort and hope that God is also working on his little brain!  We are still believing for a complete healing and one thing I know is... My God is an ON TIME God.  His purpose and plans are far beyond our limited understanding and I trust Him with all I am.  
We go back in 6 weeks for another fetal echo and in less than 2 weeks we will be with Dr. Bombry's for a growth assessment and again we are praying for a clean bill of health! 


HOW BIG IS BABY JUDAH?? Well, either I'm two weeks ahead of my due date or I have one BIG baby boy haha! He's in the 96th percentile for his age.  The doctor was questioning my due date (like always).  She said he is REALLY tall and he weighs 2lbs and 5oz - all his measurements would put him in the late 28th week of gestation.  
Love my strong baby boy and I'm believing for his complete healing!  


Proud Mamma of Judah James and London Brooks Robinson